Below you will find a survey aimed at people who have or have had tinnitus, possibly in combination with hyperacusis and/or sudden deafness.
My name is Jan Felten. I am 68 years old. In May 2018 I experienced tinnitus, hyperacusis, and sudden hearing loss in my left ear. I was getting up from my office chair and felt something happening to my ear. A feeling of dread swept over me in less than ten seconds. I’ve been living with the problem ever since and I have tried almost everything to get rid of it. Now, just over a year and a half later, I still have the same problem. It’s no better than when it all began, although I’ve learnt to live with it a little better than before.
Soon after I contacted a doctor, I realised that people don’t know very much about tinnitus – what happens physically, why we get it, and least of all how to treat it. I read everything there is to read, so I thought, in Swedish, English, and Spanish. I joined several Facebook groups for people with tinnitus and soon realised that the misery is a huge problem and, for those of us currently suffering from it, there’s no solution. Although research is underway and there are companies conducting phase 1 and phase 2 trials of substances, there is currently no real help available.
Around six months later I decided that I just had to try and do something. But what?
The idea dawned upon me to make a survey for those of us who are suffering from it and try to compile as much information as possible about tinnitus and its associated problems. Maybe, just maybe, we can find something that we can pursue further to identify something that could help even just a few of us who are affected.
Since I’m not trained in medicine myself, I’ve asked a couple of good friends with a medical background for their views on the content of the survey. It’s now ready to send out. I hope to get at least 2,000 responses to the survey from those affected by tinnitus. The survey is available in English and Swedish.
Thank you in advance for your help. Your responses are invaluable. Any conclusions or results from the survey will be published on tinnitus.tech as soon as we have something to publish. I may also publish some form of status report as work progresses. Depending on the results, there may be some form of follow-up survey later on.
When there is news to report I will publish them here.
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Once again, thank you for your help.
Kinna, Sweden, February 20, 2020